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Post by trudybee on May 19, 2002 9:36:22 GMT -5
Hi, i'm trudybee from glasgow, Scotland i've had fibromyalgia cfs for 6yrs now, the nhs offers no help apart from graded exercise has anyone got any advice on how to cope with pain and loss of motivation. Thank's trudybee
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Snoopy
Junior Member
It's a dogs life
Posts: 70
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Post by Snoopy on May 20, 2002 6:23:35 GMT -5
HI Its nice to see a new member but too bad yet another person has to suffer from this. My name is Ellen, 34, living in The Netherlands and have been diagnosised for almost a year now ( been suffering for about 2 ) We are currently trying to have a baby again and so I am not taking any meds or anything so I am not of much help. I know for me is to take things easy ( I know that isn't much help ) On my bad days I can't do much so that is the easy part but for me it is elarning not to go overboard on days I feel relatively good. I hope you can find some info on here and get advise that can be of some help to you.
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Post by TishArby on May 20, 2002 10:34:52 GMT -5
hi trudy,
glad to have you with us,....
no i dont get much help doctor wise either... but if you read through the posts of coping tips etc.. there are a few threads on things we use/do to help us..
i found accupunture really, good but the nhs stopped that,and to have it done else where is expensive... i am in the uk also, near swindon.. south west of england.
hope to see you again soooon
hugs tasha
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Snoopy
Junior Member
It's a dogs life
Posts: 70
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Post by Snoopy on May 20, 2002 12:23:39 GMT -5
After all this time I see you name is Tasha....I thought it was Tish Just proves old dogs can learn new tricks :-)
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Post by TishArby on May 20, 2002 14:08:00 GMT -5
yes, my name is natasha.. tasha for short and tishtash tish for shorter....lol
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Snoopy
Junior Member
It's a dogs life
Posts: 70
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Post by Snoopy on May 20, 2002 15:12:56 GMT -5
Well no wonder I was confused...LOL My name is Petronella but I have been called Ellen since birth.......try and figure that one out
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Post by SANNIE on Oct 14, 2004 7:58:30 GMT -5
Hi trudybee, I am SANNIE also a new member and from Glasgow. I have had cfs/fibro for about 10 years. My advice is to ask your doc to refer you to Dr. Chaudry at Southern General. He took over from Professor Behan and is a specialist on both conditions. Any appt will take a long time but will be worth it. Also ask for a referral to the rheumatology dept. at the Western, as they may be able to give advice on pain relief. I suffer from very bad 'nerve pain' and was prescribed Neurontin (Gabapentin) normally used for epilepsy, and found this has really helped. DO NOT accept a referral to the infectious diseases unit at Gartnaval, as this will be a total waste of time. Finally, I'm not sure which area in Glasgow you are from but if you are not getting good treatment from your GP CHANGE HIM. I recommend Dr. Muir at Woodside health centre as he has had M.E and knows exactly how to treat it. He also accepts patients outwith his catchment area. GOOD LUCK!!!!
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